BEGIN:VCALENDAR VERSION:2.0 PRODID:-//132.216.98.100//NONSGML kigkonsult.se iCalcreator 2.20.4// BEGIN:VEVENT UID:20250802T225841EDT-4441WsJ7Xw@132.216.98.100 DTSTAMP:20250803T025841Z DESCRIPTION: Participatory Medicine is a conference with Patrick Dubé (L iving Lab SAT/CHU Ste-Justine)\, Alessandro Delfanti (Media@ɬ﷬) and Sa lvatore Iaconesi and Oriana Persico (Art is Open Source).   Photo and in fography : Pierre-Antoine Chesnel Thursday\, February 13 at 5:30 p.m. Le acock 232\, ɬ﷬ As part of our current focus on Participato ry Media\, Media@ɬ﷬ presents two innovative case studies in Participat ory Medicine\, exploring the creative ways in which networked communicatio ns are currently being used to empower patients and patient communities. Patrick Dubé\, of Umvelt Service Design\, coordinates a Living Lab in part nership with the Société des Arts Technologiques (SAT) and the CHU Sainte- Justine children’s hospital in Montreal. His presentation will address how digital\, interactive and immersive arts practices contribute to the huma nization of health care for young hospitalized patients in this “living la boratory.”   La Cura\, a web-based experiment in a crowd-sourced “cure” f or cancer\, will be presented in the form of an exchange between Media@McG ill’s Postdoctoral Fellow\, Alessandro Delfanti\, and Art is Open Source m embers Salvatore Iaconesi and Oriana Persico. Diagnosed with brain cancer in 2012\, hacker and designer Salvatore Iaconesi published his personal me dical data in an open format online\, and invited the public to respond. T he result attests to vast range of what a cure might entail in the informa tion age (www.opensourcecureforcancer.com). The conference is free and op en to the public. Presentations Patrick Dubé - Health Care Centres as I nnovation Social Hubs: The Living Lab Experience At the heart of unique e xperiences involving the mind\, the heart and the body through pain\, joy\ , birth\, illness and death\, health care centres are often the seat of a complex symbolism\, which goes beyond the delivery of care. In a society t hat focuses more on the person behind the disease and on the experience be hind the care\, the concept of 'hospitality' gradually returns to its orig inal sense of welcoming\, of dialogues\, of collective sense-making throug h a new phenomenon: user-driven open innovation. Through several examples\ , mostly living labs from the international and local scene\, we will illu strate how seeing health care centres as social hubs can enable new forms of technological and social innovation\, not only through an actualization of the patient-partner relationship\, but also through an active particip ation of civil society as a whole. Salvatore Iaconesi and Oriana Persico - La Cura: an Open Source cure for Cancer In September 2012\, Artist\, En gineer and Hacker Salvatore Iaconesi was diagnosed with a brain cancer. H e decided to turn his tumor into a global bio-political performance to rec laim his complexity as a human being and\, in the meanwhile\, to break new grounds performing a radical experiment: publish online his own medical d ata to crowdsource his cancer\, engaging people from all over the world to find a cure and to discover what it could mean to be cured in the informa tion age. The narrative interweaves themes such as Open Data and privacy\ , to propose an analysis of the anthropological\, emotional\, financial\, technological\, spiritual\, scientific\, sociological\, bio-political and philosophical complexities of medicine in the digital era. Cancer – and t he cures suggested by people from all over the world – becomes a radical e xample of our condition as contemporary human beings\, a powerful metaphor that becomes useful to define ways in which to express and share art\, cr eativity\, scientific research\, experiences\, stories and ubiquitous conv ersations in ecosystemic\, holistic ways\, fostering the vision of human s ocieties which are aware that their well-being depends on the well-being o f all of their members. The story and the process show how we now have th e tools – technological\, methodological\, relational and anthropological – to enable people to be aware\, active and engaged agents of their societ ies. An Open Source Cure. Biographies Patrick Dubé After obtaining a Ma ster's degree in anthropology and conducting Ph.D. studies in geomatics\, Patrick Dubé started a career as a research scientist in the field of heal th care ICT. Since 2006\, he has helped organizations enhance their creati ve and innovation practices and methodologies. Directly involved in severa l open innovation initiatives with cities\, SMEs\, non-profit organization s and citizen communities\, he currently leads the SAT/CHU Sainte-Justine Living Lab in the field of health care humanization. He also presides the Montreal Table of living labs. Alessandro Delfanti is a postdoctoral fell ow at Media@ɬ﷬\, ɬ﷬\, Montreal\, where he works on the role of participatory media in contemporary biomedicine and has taught an undergraduate seminar titled. Online Cooperation in Daily Life. Alessandro also teaches Sociology of New Media at the University of Milan and is a m ember of the research group on science communication at SISSA\, in Trieste . As a journalist\, he writes about science and digital cultures for sever al Italian newspapers and magazines. He is the author of Biohackers. The P olitics of Open Science (London: Pluto\, 2013) and of Introduzione ai Medi a Digitali (Bologna: Il Mulino\, 2013). Salvatore Iaconesi is an interact ion designer\, robotics engineer\, artist\, hacker. TED Fellow 2012 and Ei senhower Fellow since 2013. He currently teaches Interaction Design and c ross-media practices at the Faculty of Architecture of the “La Sapienza” U niversity of Rome\, at ISIA Design Florence\, at the Rome University of Fi ne Arts and at the IED Design institute. He produced videogames\, artific ial intelligences\, expert systems dedicated to business and scientific re search\, entertainment systems\, mobile ecosystems\, interactive architect ures\, cross-medial publications\, augmented reality systems\, and experie nces and applications dedicated to providing products\, services and pract ices to human beings all over the world\, enabled by technologies\, networ ks and new metaphors of interactions\, across cultures and languages. His artworks and performances have been featured worldwide in museums\, at fe stivals and conferences. Salvatore actively participates to global discus sions and actions on the themes of freedoms\, new forms of expression and on the future scenarios of our planet from the points of view of energy\, environment\, multi-cultural societies\, gender mutation\, sustainability and innovation on both society and business\, collaborating with instituti ons\, enterprises and international research groups. Oriana Persico holds a degree in Communication Sciences\, and is an expert in participatory po licies and digital inclusion. She is an artist and writer. She has worked together with national governments and the European Union towards the crea tion of best practices\, standards and research in the areas of digital ri ghts\, social and technological innovation\, Digital Business Ecosystems ( DBE)\, practices for participation and knowledge sharing. Oriana writes cr itical\, scientific\, philosophical and poetical texts that connect to the cultural\, sociological\, economic and political impacts of technological innovation. She is an expert on the formal analysis of cultural and socia l trends\, with a specific focus on social networks. She creates breakthro ugh communication campaigns\, performances\, research methodologies and st rategies. DTSTART:20140213T223000Z DTEND:20140213T223000Z SUMMARY:Media@ɬ﷬ | Participatory Medicine Conference URL:/ahcs/channels/event/mediamcgill-participatory-med icine-conference-232810 END:VEVENT END:VCALENDAR